This activity is intended for primary care and specialty physicians, nurse practitioners, registered nurses, physician assistants, and other healthcare professionals with an interest in hospice and end-of-life care.
The goal of this activity is to provide readers with a current and comprehensive overview of hospice referral and care, offering guidance and resources to practicing clinicians.
Upon completion of this activity, participants will be able to:
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A quality hospice program provides an interdisciplinary team of experts that deals with all aspects of the dying process -- physical, social, practical, spiritual, and interpersonal. This team is usually mobile and works with the patient and the primary caregivers (if they have them) wherever the patient lives. It is important to note that in hospice, there are no arbitrary limitations to admission based on the patient's circumstances other than having a life expectancy of < 6 months if the disease runs its expected course.
Hospice is not a place but an applied approach to care, provided in the patient's home, nursing homes, and other facilities. A 2004 compilation by the National Hospice and Palliative Care Organization found that about 58% of patients who died under hospice care died at home, and about 22% died in a nursing facility. The remaining 20% of the patients were in hospitals, hospice-operated inpatient facilities, free-standing hospice units, and residential care settings.[4]
All hospices must provide an inpatient level of care. Hospice programs may have their own inpatient facilities or arrangements with freestanding hospice houses, hospitals, or residential centers to care for patients who have higher acuity care needs. Some hospice providers also have residential centers for patients whose social circumstances preclude care in a private residence. A significant proportion of Americans spend their last months to years in long-term care facilities. There can be some tensions between the philosophies, capabilities, and imperatives of the nursing home staff and the goals of care enumerated by the hospice staff in concert with the patient's (or proxy's) wishes. There are ongoing efforts to reconcile seemingly contradictory regulations and to facilitate improved communications and coordination among all parties involved in caring for this rapidly growing, and highly vulnerable, segment of our population.
Modern hospice care requires professionals with expertise in pain and symptom management as well as knowledge of the intra- and interpersonal dynamics at this unique time in the human life cycle. It is a team effort, with a typical interdisciplinary team consisting of medical providers (physician, nurse, nursing assistant), psychosocial care providers (social worker), spiritual care providers (chaplain), and other supportive care professionals as needed (nutritionist, physical therapist, pharmacist, speech therapist, etc.).
Besides professional support, hospice provides support for material needs such as medications for managing symptoms related to the terminal illness, durable medical equipment, and medical supplies. Current hospice care also involves volunteers who provide visitation, companionship, housekeeping help, assistance with errands, and other support. Volunteer involvement is integral to the hospice concept and is a requirement under the provisions of the MHB.